When she saw the doctor he ask why she was holding his head up and she said because he can't hold it up very long by himself. The doctor walked my granddaughter, Melissa and Zander across the parking lot to the ER. They admitted him and did blood tests, MRI and CAT scan if his neck and spine. The said all the test came back normal but were waiting for two of the test that would probably not be in for at least 10 days. They sent him home.
Last Saturday he stopped breathing and my granddaughter gave him CPR and called 911. He was rushed to the hospital. They put in a breathing tube and did more CAT Scans and another MRI and a chest Xray. The Xray showed pneumonia. They had to intubate and sedate him so the breathing machine can work for him.
Yesterday morning the pediatrician said that with all the tests and all the doctors that have looked at Zander's case and with the tests that have finally come in he has MSA Muscular Spinal Atrophy. There are three types of this disease. Type 1 which usually affects babies up to two years old and the life expectancy is two years due to respiratory complications such as pneumonia. Type 2 is not as serious but with many complications and life expectancy is longer. Type 3 is the least serious and life expectancy is a full one.
The last test came in and Zander has Type 1. My granddaughter and her husband have to decide weather to put him on life support for as long as his little life will be or to remove all tubes and let "nature take its course". How does a parent decide something as heart wrenching as this?
God preforms miracles. He has made the blind see, the crippled walk, healed leprosy and made crazy people sane. I know this is Satan and I cannot tell you how much I hate Satan. How dare he attack this sweet little baby!! I am praying that God will give us a miracle and push Satan out of the way and save our baby Zander.
The panel of doctors that have seen Zanders case along with a genetic specialist will be meeting with Melissa and Justin tomorrow to go over this disease and the options that they, as parents have.
We are all devastated and heartbroken. It is so hard to see my granddaughter in such pain and her daddy, my Son and Zander's Grandfather is a mess. He feels so helpless that he is not able to fix this for his baby girl.
They have a two year old daughter (Ava June) that was there when all of this happened and she ask her Mommy on the phone if brother was dying. Bless her heart, how did she know about death and dying. She saw a counselor yesterday.
I am going out to Vegas to be with my family on Thursday. My heart is so heavy right now.
There are many prayers going up for Zander so I am prying that God will hear them and give us a miracle. That is the only thing that will save this baby. I am asking for Prayers for the family too. We have to be strong for Melissa and Justin and this is going to be so very hard.
Thank you all
Please pray with everything you have.
24 comments:
Patti I posted in CS, but came to tell you I will be praying for Zander, and the rest of your family as you pray for a Miracle. God's knows your heart sweetie, and knows how much you all love this little one. We know it's in HIS precious hands...((gentle hugs)) My prayers will continue, and know we love you!!!
Patti, I am so sorry to hear about your Grandson. I can't even think about how it must feel without my heart breaking. I will say prayers for your family and Zander.
We're all here for you Zander, we won't stop till we have to and even then you my sweet baby will be in our hearts forever.
Dear Patti, I have tears in my eyes and my heart is heavy with sadness. I understand your families pain and will pray for them in their time of need.
Love
Patti, prayers headed to Las Vegas to help baby Zander and family. May God bless all of you. I'll do what I can to keep DW active and aware that challenges and comments may be delayed. My silent prayer for you, baby Zander, parents and other family members is ongoing.
Hugs,
Carolyn
Patricia, I am so very sorry. I'm keeping all of you in my prayers. Big hugs to you.
Dear Patti---
Please know that I am here for you whenever you need me---day or night! Your cares are my cares as I am praying diligently for a miracle for precious Zander! Where there is life there is always hope and where there is hope---there is God who is tenderly watching over Zander and his family!
There is no one but God that can pierce the darkness and bring forth brilliant light! The light is God's love and through His everlasting love is made way the path from which miracles can performed in the name of Christ for little Zander! My prayers re with you and your family! May these scriptures strengthen you and give you hope!
1 John 5:14 And this is the confidence that we have toward him, that if we ask anything according to his will he hears us.
Isaiah 40:28-31 Have you not known? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the LORD shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint.
Matthew 21:21 And Jesus answered them, “Truly, I say to you, if you have faith and do not doubt, you will not only do what has been done to the fig tree, but even if you say to this mountain, ‘Be taken up and thrown into the sea,’ it will happen.
John 16:33 I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.”
Jeremiah 29:11 For I know the plans I have for you, declares the LORD, plans for welfare and not for evil, to give you a future and a hope.
My sheep hear my voice, and I know them, and they follow me: And I give unto them eternal life; and they shall never perish, neither shall any man pluck them out of my hand. My Father, which gave them me, is greater than all; and no man is able to pluck them out of my Father’s hand. I and my Father are one.” ~ Jesus of Nazareth; John 10:27-30
“… fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.” ~ Almighty God; Isaiah 41:10
Philippians 4:19
And this same God who takes care of me will supply all your needs from his glorious riches, which have been given to us in Christ Jesus.
Romans 8:37-39
No, despite all these things, overwhelming victory is ours through Christ, who loved us.
And I am convinced that nothing can ever separate us from God’s love. Neither death nor life, neither angels nor demons, neither our fears for today nor our worries about tomorrow—not even the powers of hell can separate us from God’s love. No power in the sky above or in the earth below—indeed, nothing in all creation will ever be able to separate us from the love of God that is revealed in Christ Jesus our Lord.
Love you Sister,
Kym
Mine is just a tiny voice among so many, but He listens and hears.
Sending you much love to give you strength for this awful time.
Prayers for all the family and especially for Zander.
May God bless you all......
June xxx
Dearest Patti, I am definitely praying for Zander and for you and all the family!
I too believe in miracles!!
Gently hugging you
SueAnn
sweet Patti, I give my thoughts and prayers to you and your family to find strength and belief in miracles. hope is precious and wonderful.
I am certain you are being sent tons of love with all the hopes to help you.
please catch my hug
Carol Entin
Miracles can do happen, Patti. I pray that one happens for you all.
Patti,
Praying for Zander...believing in miracles!
I wish I had the right words, just know I care and your family is in my prayers.
Hugs,
Teddi aka foxeysquirrel
I am a firm believer in soveriegn miracles, as we have had several.I echo Kym's comment and my husband and I are praying with this near to our heart as we await our first grandchild any day now- also a boy. He is with all of you- so close that you may not sense Him because there is no distance between you. He is with the baby.And nothing can separate us from His love, it is like a second skin.
Oh Patti...I DO believe in miracles! I am so sorry your family is having to suffer like this. I will keep you all in my thoughts and prayers daily, sweetie.
I love you!
Patti, I am heartbroken for all of you. You and your whole family - and especially Zander - are all in my prayers. God bless.
I held my daughter in my arms and we prayed to the Lord for Zander to be healed and blessed with a wonderful and long loving life. My daughter is 17 months old and has learned to say her prayers, and she loves looking at other baby pictures, so she was happy to look at Zander's beautiful face and say a prayer to the all mighty Lord.
I just found your post through a post on FB..We are adding our prayers.
My prayers are with your family. I worked many years with very sick chidren. I always asked what lesson is the universe teaching us with this pain. I believe it is to make every moment count - - with kindness. I know this chid has been blessed with the best for the short time he is with us. How loved he must be.
Now I volunteer with children who see very little love - sad indeed.
Patti, I am praying for baby Zander. I agree with you, God does perform miracles and my prayer for a miracle for baby Zander and for a long, healthy life!
God bless you, Patti.
Donna
I am so sorry to read of this very sad news. Our thoughts and prayers are with you and your family at this time. May you all find strength together as a family.
Lori
Patti - my prayers are with you and your extended family and especially dear little Zander and his parents. I have young children and cannot even begin to imagine what you are all going through. I left a message at Digital Whisper with my prayers for Zander.
You are in my thoughts.
Marie.
Sorry, Patti, I don't have young children - I have young grandchildren and they are the light in my life.
Dear Patti, My heart just grieves for you and your family. I never understand these things. I am praying for comfort in this difficult time and surrounding you all with angels.
all my love, Laura Botsford
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