Tuesday, March 2, 2010
SOME DAYS I JUST WANT TO RUN AWAY
Some days I feel as if I am spinning my wheels and getting no where.
These endless doctors appointments and tests to find out what is wrong with Alan other than his lymphoma and leukemia are getting to him and being his wife I get the brunt of it. I try so hard to be understanding of his situation and the frustration he is feeling but I am feeling it too. Who does he take it out on? ME!
For over a year now he has had a cough, first it was violent and productive and he has seen doctor after doctor and has had Xray after Xray and sputum culture after sputum culture and has been on different antibiotics 30 days at a time three times now.
His first doctor completely misdiagnosed his lymphoma and leukemia and put him on an inhaler that caused a scary side effect that landed him in the ER. We immediately got rid of that quack. The new doctor did an Xray that showed pneumonia so he was treated for that and 2 months later the cough came back so the next Xray showed a bacterial infection in the lung so he was treated for that and 2 weeks later the cough was back.
Finally his oncologist this week told us that he does have yet another strain of staph infection in his lungs and she has put him on a strong antibiotic for 7 days and if this doesn't work she said he may have to have an antibiotic through an IV. She has scheduled him to see an ENT thinking it may have something to do with his sinuses. I am going to come unglued if all of this is due to a sinus infection!
The insurance companies have paid for thousands of dollars in Cat Scans and MRI's and Xrays and cultures and doctors visits when it could have been caught right away if he would have had a doctor that was on top of things. The recent Xray and sputum culture shows a staph infection in his lung. What is causing all of this. The clincher is that the oncologist said she saw a spot on his lung that was a concern to her but she THOUGHT it was not active. What!!? So what it is this spot? Come on! How does she know it is not active and what the heck is it?
I could go on and on but it won't do any good. I guess I just need to vent.
I am losing my faith in all doctors. I know there are some wonderful caring doctors out there but they are not here in Coos Bay!
So I am feeling sorry for myself today and I want to run away.
Hugs wanted....thanks for listening